Transforming the lives of people living with low prevalence diseases
In keeping with our aim to have a positive impact on society, at Ferrer we focus on improving patients’ experience
One of the ways we do this is by adopting a holistic approach, through a programme that transforms how they experience key moments in their healthcare process.
This initiative aims to take a step back, so as to see from a more objective standpoint the interrelationships that exists between the different players involved in the healthcare system.
From this standpoint, opportunities for improvement are identified, to improve the way patients interact with all the major elements that contribute to their medical care.
Phantasticals, a clear commitment to patients
As part of our commitment to patients and in order to give a voice to people living with rare diseases, we created the Phantasticals campaign
This initiative aims to raise public awareness of our core therapeutic areas: vascular and interstitial lung diseases and neurological disorders.
The Phantasticals are rare, strong and extraordinary creatures that often go unnoticed or are dismissed as unlikely, just like people who suffer from serious and debilitating diseases of low prevalence, such as pulmonary hypertension (PH) and amyotrophic lateral sclerosis (ALS).
We see people with PH as mermaids, because living with the disease is often compared to the sensation of trying to breathe underwater,
and people with ALS as dragons, because, unfortunately, as time goes by, they notice that their inner fire is being extinguished.
It’s high time we began to see these people for who they are and what they stand for
At Ferrer we understand that each patient is unique and that’s why, through this project, we want to show our commitment to these people and their families by contributing to the dissemination of information about these diseases.
To this end, on the occasion of World Pulmonary Hypertension (PH) Day, which is celebrated every 5 May, Ferrer and the European Pulmonary Hypertension Association (PHA Europe) brought to life the mermaids PHoebe, PAHola and PHILDa, three extraordinary beings that help us understand what Pulmonary Hypertension (PH) is, as well as two of its subtypes: Pulmonary Arterial Hypertension and Pulmonary Hypertension associated with Interstitial Lung Disease (PAH and PH-ILD).
To mark World Amyotrophic Lateral Sclerosis (ALS) Day on 21 June, the Phantasticals campaign added a new fantasy creature to raise awareness of ALS, a rare, progressive, neurodegenerative disease that affects motor neurons in the brain.
The new character is a dragon named ALSton.
